I hate the internet….
so on Monday before Zeke’s surgery the doctors and anesthesiologists were very concerned when they learned he had hypotonia and asthma. Apprarently it can cause problems during surgery and they were really concerned. then they asked if I knew why he had it, I was a little lost, in that I thought his diagnosis was hypotonia, but apparently that is a SYMPTOM! He asked if they had done genetic testing on him and I was floored. I told him all I know is that he has it and that’s all I know. the more doctors and therapists we see the more concerning this becomes to me. Sounds like I need to go see the primary doctor again for him and find out what the real deal is w/ him. the possible causes dont sound so good, that’s what I get for googling it!!
today we spent 2 hours at the gastroenterologist for Bo’s weight issues. not much to say about that other than this should be fun, and that they referred us elsewhere. tomorrow he has a speech evaluation and on Friday he and Caleb see the ent, again….I am so sick of childrens hospital….but at least they are awesome as far as doctors go…the room today the exam room that is, had a tv and they brought us several boxes of toys, and that was the exam room not the waiting room!!
well off to figure out dinner…
