well I know you dont want to hear more whining, so I’ll understand if you dont keep reading, but this is how my day yesterday went: (this is what I wrote earlier in an email to a PTC -pseudo tumor cerebri-message board so sorry for all the abbreviations, I’m not up to writing it all over again here)
I
ended up in the ER for most of today to get a blood patch. I spent all
morning throwing up if I tried to get out of bed and feeling like I was
dying. So I went in, told them my neuro sent me for a blood patch and that
I’d been throwing up. They are told by the dr doing the patch to give me an
iv, they didn’t do it, so I ended up in the OR for the blood patch w/ no
blood for them to take because I was too dehydrated. They put in the
epidural first then tried at least 5 times to get blood, it hurt like heck.
After the 4th stick I told them my back hurt, she said the needle moved and
had to redo it, yet still didn’t have my blood ready, so once the epi was
fixed she went to retry drawing blood. After another failed attempt or two
I was in tears and in pain and told them to stop. The dr complained that if
I had gotten an iv first they could have drawn blood but my veins kept
collapsing. Needless to say I am now home after being filled w/ tons of iv
fluids and ended up w/ no blood patch. My head feels somewhat better and
they gave me some phenegran for the nausea and vomiting, that also puts me
to sleep. So more bedrest for me and hopefully tomorrow will be better.
I have had the worst PTC week and my hospital experiences were the worst ever, not that the care was bad really just things didn’t go as they should
have. I hate to tell my horror story but I am so upset. I kept crying in
the ER after the failed attempt at a blood patch and the nurses kept asking
what was wrong, mostly I was mad it didn’t happen but I think it was more
pregnancy hormones making me upset. I was so worried while in the OR the
stress was going to harm my baby, and they never checked for the baby’s
heartbeat or anything. I think I”ll call the ob tomorrow so she knows what
is going on.
so thats the story. today I am feeling so much better, I must have really been dehydrated and needed all of that iv fluids, cause I feel like a new person this morning. achy and full of bruises to prove all the pokes and prods but other than that doing ok. Poor Dean is on day 3 out of work for me, I hate it, but last night we thought I”d be a mess today. I’m glad to have his help and after today I should be up and about, the last ER dr said the sooner I can get up out of bed and moving the better for me and the baby. So I”m all for that. I’ve been told by several people that 26 is indeed not a normal pressure reading and that I should talk to my dr or get a new one, and I honestly know for me, that I only feel so good right now because they did a spinal and took some pressure off. So I dont know if I”m up to fighting w/ the dr over it becuase I dont want to take PTC drugs right now, if it gets bad again I might try to get another spinal, maybe, but no drugs. I honestly know for myself that I had classic PTC headaches and now after recovering from the spinal I feel fine should be proof of that. I am praying the rest of my week goes smoothly as I dont think I could take much more right now. I hope everyone else is having a good week!!!