It’s been a long long week. Well my last few entries mentioned how sick I was feeling. On Wednesday I felt like I was dying, yet was still home w/ Caleb by myself. On waking Thursday morning felt the same and told Dean he had to stay home. I made a 9 am drs appt and Dean and Caleb went with me. The plan was dr appt, then take Caleb to my friends so he could stay there while I went home to rest and Dean to work. This is how the day ended up going.
9am- Drs appt, was told to go straight to the ER
9:30-10:30 dropped Caleb off at friends, headed the the ER
10:30-12:30 waited in ER waiting room
2:30 cat scan
3:25 MORPHIN is my friend!
3:30 spinal tap
RELIEF!!!!!
was told they were admitting me for at least 48 hours
stayed in ER room until 2 am at which point I was moved to an isolation room, you had to wear a mask to come visit me where I stayed til…
fast forward …today… I finally left the hospital shortly before 2 pm I believe.
I went in w/ suspected meningitis all the isolation were in case it was bacterial, thank God it ended up being just viral. But the meningitis raises the pressure in your spinal fluid which for me is bad because my pressure is already up w/ the pseudo tumor. So last year this time when I had a spinal tap the pressure was 31, this week it was 51, the normal range is 10-20!!! Not to mention my white blood count was 500 and normal is 0-5! So in reality if I hadnt ended up in the ER things could have been a lot worse, but I now know why I felt like I was dying.
In Dec 2002 I had eye surgery to fix some problems my spinal fluid pressure caused my eyes, and on Thursday my neuro. said that my eyes were worse than they were before my surgery, and my right eye which had not been operated on was worse than it had ever been too. We are hoping w/ treatment things will reverse itself after the meningitis is gone but there’s no sure guarantee. I’m on some new meds which keep me from eating much, which is bad cause I havent eaten in almost a week. At least I’ll lose some weight quicker than we thought I would. I talked to a dietician briefly today and I think my neuro. is going to set me up w/ someone too, since that was just a hospital staffed dietician.
Just wanted everyone to be updated. I no longer feel like I am dying, but am not yet fully back to myself so keep praying for us. Caleb didnt take my departure for so long well, he’s been very cuddly w/ me since I’ve been home, which is great because I missed him. Friday afternoon Dean had to go get Caleb from his favorite playmates house because he was so upset, and only left him again last night cause my mom came to watch him at our house which calmed him some. today Dean didnt leave him at all, even brought him w/ him to the hospital to pick me up, he couldnt come up to see me so they just waited in the car outside for me. So hopefully Caleb recovers quickly and is back to his old self soon. Hope everyone has a great weekend and a better week!!!

My gosh Amy!! I’m so sorry (HUGS) …..so glad you got help and you’re feeling better!!!!
I’ll be praying for you!
Wow, Amy! I’m glad your docs are keeping close tabs on things, and I’m very glad you’re feeling better! Thinking of you!
How scary! I am glad to hear you are ok now though and feeling a bit better 🙂
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