Wisdom from my walk

one more fav…meant to add it yesterday. this one honestly depicts Bo’s normal rate of motion, he’s always in fast mode!

more pics up on Flickr from Cincy Kids.  here’s some of my favs:

Jambulance

Zeke & Amy

This clown’s name is That-a-way.  he greets kids at the church entrance every service every weekend, and Bo has been scared to death of him.  We’ve been seeing a lot of him at cincy kids and today Bo actually talked to him and wanted to be near him, a lot of progress actually.   He was missing at church for a few weeks and I was getting concerned, but then he showed up again, he had been on a mission trip to Mexico.  he’s such a cool guy, and he’s so committed.

the family at the Cincy Kids block party today.   not a great pic, but it got all of us so that’s what matters

new pics up on Flickr.  but here’s a few of my favs:

Boaz, caleb, & Zeke

Brotherly love, boaz & Zeke

Cousins, Boaz, Zeke, brianna and Wally Jr

.

Amy & Zeke

Caleb, Zeke, Laura, Emmett, and Boaz at Glenwood gardens

I must be nuts.  we just got back from a short trip to a park, it’s been raining off and on all day so far.    Zeke and Bo had a “field trip” to meet w/ their early intervention class at this park so we needed to go.   I was dumb enough to start my prednisone at around 10:30 last night.  I fell right to sleep, before Dean even because I was so wiped up but after that initial falling asleep I was up for most of the night.   It was  a long night and I had a horrible headache all morning and just feel crappy.  but I managed to load up the kids, luckily with the help of their cousins that are staying w/ us for a few days, but that also meant I was going to the park alone w/ 5 kids.   I had even managed to pack lunches for everyone so that was good.  Right now we are home while Zeke naps and the boys are playing on the wii.  Bo just had his first accident of the day, unfortunately it was a poopy one.  yuck!

Deans work was going on a “field trip” of their own today.  He was going to the Reds game free of charge, food expenses were going to be covered too.   the good for me is that hopefully that means he’ll be home well before 5 since the game started at noon.   I’m praying the game ends soon so he can take over watching the kids so I can rest, but I just took more prednisone so maybe I will get a spurt of energy.   so the pain in my foot is slowly fading but I feel like crap.  is it worth it, I guess.  hopefully in the long run it will be.

I’m signed up to do childcare at church tonight and if I dont get some rest before then I imagine I’ll be in no shape to watch anyones kids, mine or others.   so praying the baseball game ends soon so deaner can be here soon

I was anxious about my doctors appointment today.  I’d been researching gout and enzyme disorders and couldnt find much, guessing since it’s so rare in women my age.  I knew the dr had been concerned about my having an enzyme disorder if I do indeed have gout.  After spending a few hours going through what medical records I have from my past doctors I came across something that I knew might actually convince her that she might be wrong and that I could have gout.   I found labwork from 2001 which showed a very elevated uric acid level.  My highest level was 9 that I knew of, the labwork from 2001 was a level of 9.9.  anything over 6 is considered high in women.   So for at least 6 years I’ve had high uric acid.  Untreated high uric leads to gout and worse yet kidney stones or liver damage.  So…after that info and the fact I was having a gout attack now, which she believed once she saw my foot and I described the pain, which leaves me laying in bed at night wanting to cut my toe off, that’s how painful it is.   So she admits I have gout, she changed my diagnosis even today so I know she accepts it as true now.  Gladly she prescribed some prednisone.  I’m already on pain pills twice a day and I’ve been taking tylenol round the clock too and still am in extreme pain so that was the only option left to us, steriods.  if the steriods dont help I dont know what else they’d do, praying we dont need to find out.

so her best guess is that I have a metabolic disorder(or enzyme disorder) no matter what she knows this is rare and said “it’s something we’re going to have to watch”  that was her answer to my questions about what other concerns I should have about the future since I know I”ll be on this one drug for the rest of my life to control the uric acid level.   So I didnt really find out anything new.  I’ve had two rare health conditions, ok, have.   I dread what life will look like as I get older, heck I’m not even thirty and I’m dealing with a disease that mostly hits older folks, post menopausal women or men past 40 I believe.   blah..

I just love my body.   I just want to be have a normal life.  I guess as long as the dr is aware of this now and I’ve told her my concern about all of the conditions I have and that I’m afraid we’re missing something she said she’ll keep an eye out for info on any related conditions that include the symptoms I’ve had over the years.

well I’m exhausted and we’ve got an exciting week ahead of us.   so I need to focus on that and hopefully the pain will go away in a day or so after I start the steroids, thank god for medicine.

Caleb went to spend the night w/ his grandparents and currently Dean, Zeke and Bo are headed to kings Island to ride some kiddie rides w/ Dean’s brother and his two kids, who are each about 6 months in age from our two youngest.  I was going to go w/ dean and the kids but my head is killing me and the nauseas has yet to subside.   I got most of all of the household chores done earlier today, in addition to making some oatmeal raisin cookies.  All I need to work on before bed is putting away all of the laundry which should be “loads” of fun!  :-)  So off to put away laundry then settle in to bed early.  The rest of the week is going to be busy and if I already feel crappy staying in all day and taking things as easy as I  can wont hurt.  I’ve been busy though all day, the house is clean, dinner was cooking when Dean got home, cookies had been baked and the laundry was all almost done, meanwhile I attended to my kids and one of Caleb’s friends who spent the day here.  She even went home(the end of our street) to get her lunch and brought it here to eat it with Caleb as he ate his lunch, they ended up sharing which was cool because it meant Caleb realized he likes skyline chili.    these things are never planned, when playmates stay here all day.  they come over and never leave.  she didnt want to leave, I kicked her out so that I could work on dinner and so that caleb could get his things ready to go to his grandparents house.    I dont mind, they got rowdy at times but out of all his playmates here I like her the best.  She loves Bo and zeke as much as she does Caleb.  when she first showed up today she asked where Bo was and said she wanted to play w/ him too.  and she inlcudes him in just like he were a big kid, as opposed to the other kids who mock and tease him since he’s so big yet so young.   she’s honestly the most compassionate and loving little girl I’ve ever met, I told her mom so and that I dont doubt she is a caregiver of sorts or works w/ animals as an adult.  She’s sneaky at times but not nearly as bad as some of the kids…needless to say, I like her and it gives me a chance to feel like there’s a girl in the family when she’s around.

well off to finish up the laundry and head into bed, after I make it, I washed everyone’s sheets today which will make for another thing to add to the before bed to do list, but at least I’m home alone to work on whats left of my chores today.  bo still hadnt had any accidents, we braved taking him out this evening w/ out a diaper.  I had originally left w/ them to go out but had dean bring me home, so I told him to make sure when they get there to put a pull up on Bo since it will be hard to keep up w/ on his own at Kings island and Bo said no when I said that, so maybe he’ll take to this easier than I thought, PLEASE GOD!  one less expense like Bo’s diapers which has been ridiculous since he only fits in 4T/5T pullups which there are at most about 21 in a pack which costs a lot for just that many compared to the smaller sizes which you get more of.    so hopefully this will be the first week of no diapers for Bo.   as silly as it sounds, prayers for me and Bo while we go through this transition are greatly appreciated!!!  I’m just not up to it patience and energy wise but I tried hard today and so far it’s worked out!!

we’ve had a laid back day hanging around the house today.   I feel horrible all of the sudden.  i threw up once and feel like I still need to.  Bo’s been wearing big kid underwear all day.  he hasnt peed in them, he’s gone on the potty all day but he’s pooped in his underwear once, i hate that part of potty training.   but at least I havent changed any Bo diapers all day! wohoo!! so I guess in the end it will be worth it.