Indifference…

I was anxious about my doctors appointment today.  I’d been researching gout and enzyme disorders and couldnt find much, guessing since it’s so rare in women my age.  I knew the dr had been concerned about my having an enzyme disorder if I do indeed have gout.  After spending a few hours going through what medical records I have from my past doctors I came across something that I knew might actually convince her that she might be wrong and that I could have gout.   I found labwork from 2001 which showed a very elevated uric acid level.  My highest level was 9 that I knew of, the labwork from 2001 was a level of 9.9.  anything over 6 is considered high in women.   So for at least 6 years I’ve had high uric acid.  Untreated high uric leads to gout and worse yet kidney stones or liver damage.  So…after that info and the fact I was having a gout attack now, which she believed once she saw my foot and I described the pain, which leaves me laying in bed at night wanting to cut my toe off, that’s how painful it is.   So she admits I have gout, she changed my diagnosis even today so I know she accepts it as true now.  Gladly she prescribed some prednisone.  I’m already on pain pills twice a day and I’ve been taking tylenol round the clock too and still am in extreme pain so that was the only option left to us, steriods.  if the steriods dont help I dont know what else they’d do, praying we dont need to find out.

so her best guess is that I have a metabolic disorder(or enzyme disorder) no matter what she knows this is rare and said “it’s something we’re going to have to watch”  that was her answer to my questions about what other concerns I should have about the future since I know I”ll be on this one drug for the rest of my life to control the uric acid level.   So I didnt really find out anything new.  I’ve had two rare health conditions, ok, have.   I dread what life will look like as I get older, heck I’m not even thirty and I’m dealing with a disease that mostly hits older folks, post menopausal women or men past 40 I believe.   blah..

I just love my body.   I just want to be have a normal life.  I guess as long as the dr is aware of this now and I’ve told her my concern about all of the conditions I have and that I’m afraid we’re missing something she said she’ll keep an eye out for info on any related conditions that include the symptoms I’ve had over the years.

well I’m exhausted and we’ve got an exciting week ahead of us.   so I need to focus on that and hopefully the pain will go away in a day or so after I start the steroids, thank god for medicine.