Breaking through the Fibrofog...

I hate the internet….

Amy — Tue, 22 Jul 2008 20:43:34 +0000

so on Monday before Zeke’s surgery the doctors and anesthesiologists were very concerned when they learned he had hypotonia and asthma. Apprarently it can cause problems during surgery and they were really concerned. then they asked if I knew why he had it, I was a little lost, in that I thought his diagnosis was hypotonia, but apparently that is a SYMPTOM! He asked if they had done genetic testing on him and I was floored. I told him all I know is that he has it and that’s all I know. the more doctors and therapists we see the more concerning this becomes to me. Sounds like I need to go see the primary doctor again for him and find out what the real deal is w/ him. the possible causes dont sound so good, that’s what I get for googling it!!

today we spent 2 hours at the gastroenterologist for Bo’s weight issues. not much to say about that other than this should be fun, and that they referred us elsewhere. tomorrow he has a speech evaluation and on Friday he and Caleb see the ent, again….I am so sick of childrens hospital….but at least they are awesome as far as doctors go…the room today the exam room that is, had a tv and they brought us several boxes of toys, and that was the exam room not the waiting room!!

well off to figure out dinner…

Amy — Mon, 21 Jul 2008 16:46:01 +0000

we’re home from Zeke’s surgery. he is doing great, other than being a grouch! he is supposed to start a liquid diet then progress but he’s sitting next to me shoving in crackers w/ squeeze cheese because he is starving and keeps eating like he is fine!! pray he doesnt throw it up all over me!! It wasnt worth the fight of not letting him eat, I figure if he’s that hungry his body will adjust to it!! he doesnt seem to be in any pain just tired and hungry, and I am too!!

Caleb is at my friends house playing and Bo is off someplace w/ his granddad, not sure where since we cant get him to answer his phone….so hoping after some food zeke naps so I can rest too! I had a rough night sleep since I was worried about my baby’s upcoming surgery and the emotional morning is wearing on me. it was pretty hard for me to handle, but now we’re safe at home and he’s doing great, so I am doing a lot better too!

Amy — Thu, 17 Jul 2008 23:06:17 +0000

spent too long at the pool in the hot sun today, afterward I drove Caleb to his grandparents house to spend the night and on the way home the lil’ ones fell asleep and I tried not to since I had a killer migraine! we picked up Dean and dinner on the way home and when we got in the door I crashed on the sofa for over an hour. I’m up now but my head is still killing me. praying I’m not starting to get sick. Zeke still has his pre-op appt tomorrow afternoon but I’m not sure if he’ll still have his surgery on Monday or not. He’s been really grouchy today and complaining about pain when eating. I hate to have him remember this and the surgery together and have horrible painful memories of it!

well i’ts almost bed time for the boys, thankfully. I am laying in bed currently typing this but I have tons of chores to do since we’re hosting a moms night out game night tomorrow, well I have invited tons to it but so far no one has RSVP’d yes so that’s kind of frustrating. but I’ll have some snacks and the house ready in case someone decides to come!

my head is really hurting so I’ll be done for now….

Amy — Wed, 16 Jul 2008 23:19:23 +0000

Just like Bo’s first hearing test before he got tubes he still has some hearing loss. Todays was a little better than the last one, but he had fluid in both ears, the tubes have fallen out and he has mild-slight conductive hearing loss. He and Caleb see the ENT next week, Friday I think. I am probably going to reschedule Zeke’s surgery since he might be sick still and chances are Bo will need surgery and we could just do them the same day to avoid needing a sitter. We wont know til Caleb’s hearing test week how he is doing and how his ears are, but at his doctors appt this week there was no mention of anything wrong when the doctor looked in his ears, so hopefully only 2 of the three will need surgery again. I might call tomorrow and see if Bo even needs to be seen since he had the hearing test today and see if they’ll just schedule his surgery w/ Zekes w/out the fuss of having to see the doctor since I’m sure I’ll know that the outcome is the same as Zeke’s.

Fun times….Bo did a GREAT job today and at least now we know that there is a reason he’s still having speech delays. I’m praying though that this is it and that after these tubes he’s good to go and his speech improves even more.

Caleb is still sick and miserable. Zeke has been saying he has ‘owies” in his mouth. Dean took a half day off to work from home and I was able to take Bo to his hearing test then go to curves w/ my friend. we havent been in a while since I hurt my foot at least, but we have gone twice this week now. Praying we can get motivated again and keep going so I can lose all that weight I’ve gained while tending to my injured feet.

Amy — Tue, 15 Jul 2008 17:39:00 +0000

Zeke and Caleb have coxsackie virus, probably better known as hand foot and mouth disease. They have horribly painful mouth sores and today Caleb has an upset stomach. he hasnt eaten in a day or two and is completely unbearable. so what’s the doctors recommendation for a child who wont put anything in his mouth, gargle w/ a mix of benadryl and mylanta…yeah you try it! So I got Zeke to do it fine suprisingly, but Caleb tasted it and that was it. the poor kid is so hungry and cant eat anything. Friends we visited in maryland have it too so that is probably where we got it. I’m praying the rest of us stay well!! I’m trying really hard to keep cups and utensils separate!

on a happier note, it’s our neices’ birthday! happy Birthday Laura!!!

who am I kidding?

Amy — Tue, 15 Jul 2008 01:28:15 +0000

So this afternoon I went to the podiatrist, to re-check the fracture and discuss what to do about the arthritis and bone spur that is causing me significant pain. He asked how I was doing and I told him honestly that the fractured spot seems fine but that the big toe pain is nearly unbearable. He starts by telling me what my first option is, which is a cortisone injection and he asked what I thought of that. I said other than having heard it’s extremely painful I was game for anything, and told him how Dean and I joke about it being so painful I’d cut my toe off if it would help. So we decide it’s worth a try, he says for some people it gives relief for only for a few weeks while others it helps for up to 6 months. Ideally he said he’s trying to get me through the end of the year w/ this shot. I am game for that, because if not the answer is surgery w/ a pretty long recovery time considering my job is primarily taking care of three kids all day. So while chit chatting about things, like our vacation and such he mentions he likes my shirt and asked what the 3 on it meant. Thinking back I am suprised myself w/ my own answer, but I explained it was for the summer of service that our church holds for teens and the three represents the theme from last year which is God first, others second and putting myself 3rd. He was kind of surprised and said that that’s hard for some folks to even say, and I had just put it out there like it was nothing. he said his wife agrees w/ that and asked where the church is, that he’d heard of it but didnt know where it was. Of course it’s one of those, if I had thought quicker moments I might have been able to delve deeper, but I’ll see him again, unfortunately for me! But I’ve wondered since then if i have any right to wear that shirt. it was a free shirt, I got it just because I served that week, or volunteered as some non religious folk might say. I wear it often because it’s comfy and it is a cool looking shirt. But if I really thought about it before I put it on maybe I wouldnt wear it. I’m not that selfless folks, heck I went to the doctor hoping to get a surgery scheduled so I’d be painfree sooner than later and knew that would mean others having to deal w/ my resposibilities and kids for quite a while, but I still thought that was ok. I didnt ever once think of the greater healing, you know if I prayed and truly believed for healing, the instant recovery, no added costs answer. why…because I’m selfish. So since then my foot has been numb, thanks to the novacaine added to the cortisone shot and I’m supposed to ice it down then put bengay on it overnight and take advil and he thinks I will feel great tomorrow. So I am already planning on going to curves tomorrow, I’ve gained over 20 lbs since my first foot injury about 2 months ago and again, I selfishly cant take it. I hate how I look and feel. it’s all about me. Maybe next time before I wear that shirt I should think first and give myself a reality check. I’m not fooling anyone am I?? Selfless my butt…..now what to do about that…..

my heart goes out….

Amy — Tue, 15 Jul 2008 00:57:45 +0000

The Reiders have been through a lot and I am saddened by the news of Katie’s death. I read such a good update yesterday and was hopeful for them, and then this. I am just heartbroken. She wasnt much older than myself and left behind a loving family. Please keep them in your prayers!!

Amy — Sat, 12 Jul 2008 18:56:29 +0000

so last night we had a date night. we went to a seafood restaurant then the movies. When deciding what movie to decide, Dean ended up choosing himself and chose Hellboy 2. I’ve never heard of it nor seen the first and wasnt interested in seeing it. I was sick from dinner so missed a good deal of the beginning and of course when I did walk in it was way too graphic for me. We both agreed the parents who had their kids there were idiots. this is NOT a kids film, anyone who thinks something w/a title w/ that would be is truly stupid. I didnt hate the movie but I was mad to begin w/ that we were seeing something I had no interest in, add to that that it was a little much for me, and I wasnt happy. it wasnt horrible and I didnt have nightmares and it was a little funny. I compared it to being a more violent shrek. from the reviews I’ve read I am suprised since I dont think it was that funny at all, I laughed a few times but it wasnt pee your pants or cry your eyes out from laughter funny. if you are into that kind of thing I guess it was good. the end was far better for me than what I saw at about 30 minutes in. today we helped friends move and are now hanging out at my moms, stealing someones internet via the air to type this, my mom doesnt approve of that!

I am exhausted! tomorrow we head home….more to come after that…

Amy — Fri, 11 Jul 2008 17:46:28 +0000

last night we went to my friends house and had some more friends over for a game night. there were a ton of kids but overall it went well, except the one busted lip! :-) Today my friend and her kids met us at the science center then we went to lunch together. Now I’m praying the boys rest some, we were up til almost 1, the boys were up til midnight!! then I’m off later to take the boys to my mom and Dean and I will have a date night. wohoo!! more pics up on Flickr today.

loads of pics!!

Amy — Fri, 11 Jul 2008 04:51:33 +0000

over 300 pics on Flickr of our trip so far!! some really awesome ones too, I need to rotate some still and make some changes but they are there and that was a struggle, the internet at the hotel is slow….finally got a fast connection after midnight tonight!!