I dont know how I feel right now, emotionally that is. Drained is the best description. I saw a neurologist for the first time since leaving Balto., which meant a nice long look into my past medical history. Hearing a dr tell you you may have MS is daunting and downright frightening at least! But…since I’ve been down this path and been convinced by my old dr that the lesions on my brain that showed up on the MRI was not of concern and doubtingly obliged his recommendation to go back to my primary care doctor for more help. Here is is almost 2 years since that conversation took place. Back then I went home from that first mention of MS in tears. Today I left the doctors office in a compusure that suprises me even now. I just dont care. I’d rather this dr try to figure out what is wrong than take the other doctors answer of “I dont know what’s wrong with you lets wait and see if it goes away on it’s on approach?” The point is, I’ve been sick since 2002 at least, before I even had Caleb I was wrongly misdiagnosed w/ something else to explain away symptoms that still bother me today. The truth is even if they dont come up w/ a “name” for what this is, I’d rather them try. I’d rather consider MS, instead of keeping living every day being miserable and pretending I can be supermom when the truth is I hurt, I am tired and there have been more days then one I have hand tremors, fall for no reason or just cant get out of bed because of pain. I want to be able to tell people that theres something wrong w/ me if I can instead of trying to do everything for everyone because how can you say no when there’s no good reason you cant do it all?
the plan…sleep test tonight and tomorrow, get those results on Monday or tomorrow if the dr is in and it’s a clear cut answer. MRI next week – results in 3 weeks.  Oohhhh I just love starting this process all over again?!?! Anyone want to babysit so I can do said appointments?!?
Amy,
Just a thought for something else you might want to mention to your dr. My family (in prevoius generations) has something called spino-cerebellar ataxia. There are MANY forms of ataxia such as Marie’s and Frederic’s. You might want to mention this to your dr. because ataxia is often misdiagnosed as MS. My dad said that he’s not sure about the hand tremors and pain symptoms but the falling for no reason is a common symptom of ataxia. Dad saw one of his 2nd cousins suffer from the disease so this is how he knows some of the symptoms. You might check out something called the National Ataxia Foundation (I think they have a website) to see if the symptoms you have are listed. Just my thoughts.
what you just described sounds EXACTLY like what my friend’s husband’s been going through. He’s of course been diagnosed with fibromyalgia but the treatment for that doesn’t seem to be helping. The doc’s are still trying to figure out what the deal is. I hope it all works out for you and you get some definitive answers.
I have no idea what it must be like to endure not only pain but what seems like the inability to figure out what it is that you’re dealing with. Not to mention doing all of that while raising three boys. All I can say is that I’m here if you ever need to vent, talk, hang out, do whatever. The fact that you do what you do is astounding. 🙂 I’ll be praying that the doctors can figure out what’s going on so there is a clear direction in treating the issues that you have. Love